Sara Hull Chandros: search on Z-Library

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1

Scrutinizing the Right Not to Know

Berkman, Benjamin E., Hull, Sara Chandros, Biesecker, Leslie G.

Journal:

American Journal of Bioethics

Year:

2015

Language:

english

File:

PDF, 68 KB

english, 2015

2

Access to health insurance: Experiences and attitudes of those with genetic versus non-genetic medical conditions

Nancy E. Kass, Amy M. Medley, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin

Journal:

American Journal of Medical Genetics Part A

Year:

2007

Language:

english

File:

PDF, 122 KB

english, 2007

3

The Use of Medical Records in Research: What Do Patients Want?

Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin, Julia Slutsman

Journal:

The Journal of Law, Medicine & Ethics

Year:

2003

Language:

english

File:

PDF, 566 KB

english, 2003

4

Prenatal Whole Genome Sequencing : Just Because We Can, Should We?

Greer Donley, Sara Chandros Hull, Benjamin E. Berkman

Journal:

Hastings Center Report

Year:

2012

Language:

english

File:

PDF, 374 KB

english, 2012

5

The Invisible Hand in Clinical Research: The Study Coordinator's Critical Role in Human Subjects Protection

Arlene M. Davis, Sara Chandros Hull, Christine Grady, Benjamin S. Wilfond, Gail E. Henderson

Journal:

The Journal of Law, Medicine & Ethics

Year:

2002

Language:

english

File:

PDF, 1.48 MB

english, 2002

6

Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditions

Laura Plantinga, Marvin R. Natowicz, Nancy E. Kass, Sara Chandros Hull, Lawrence O. Gostin, Ruth R. Faden

Journal:

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Year:

2003

Language:

english

File:

PDF, 96 KB

english, 2003

7

Genomics really gets personal: How exome and whole genome sequencing challenge the ethical framework of human genetics research

Holly K. Tabor, Benjamin E. Berkman, Sara Chandros Hull, Michael J. Bamshad

Journal:

American Journal of Medical Genetics Part A

Year:

2011

Language:

english

File:

PDF, 124 KB

english, 2011

8

Medical privacy and the disclosure of personal medical information: The beliefs and experiences of those with genetic and other clinical conditions

Nancy E. Kass, Sara Chandros Hull, Marvin R. Natowicz, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin, Julia Slutsman

Journal:

American Journal of Medical Genetics Part A

Year:

2004

Language:

english

File:

PDF, 97 KB

english, 2004

9

What Does It Mean To Be Identifiable?

Hull, Sara Chandros, Wilfond, Benjamin S.

Journal:

American Journal of Bioethics

Year:

2008

Language:

english

File:

PDF, 41 KB

english, 2008

10

Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers

Hiratsuka, Vanessa Y., Hahn, Michael J., Woodbury, R. Brian, Hull, Sara Chandros, Wilson, David R., Bonham, Vence L., Dillard, Denise A., Avey, Jaedon P., Beckel-Mitchener, Andrea C., Blome, Juliana,

Journal:

Genetics in Medicine

Year:

2020

File:

PDF, 362 KB

2020

11

Ambivalence toward undergoing invasive prenatal testing: an exploration of its origins

Julie Chevalier Sapp, Sara Chandros Hull, Shelby Duffer, Sarah Zornetzer, Erica Sutton, Theresa M. Marteau, Barbara Bowles Biesecker

Journal:

Prenatal Diagnosis

Year:

2010

Language:

english

File:

PDF, 79 KB

english, 2010

12

Reading between the lines: Direct-to-consumer advertising of genetic testing in the USA

Hull, Sara Chandros, Prasad, Kiran

Journal:

Reproductive Health Matters

Year:

2001

Language:

english

File:

PDF, 442 KB

english, 2001

13

Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field

Hull, Sara Chandros

Journal:

Journal of Health Care for the Poor and Underserved

Year:

2019

File:

PDF, 1.03 MB

2019

14

A Clinical Service to Support the Return of Secondary Genomic Findings in Human Research

Darnell, Andrew J., Austin, Howard, Bluemke, David A., Cannon, Richard O., Fischbeck, Kenneth, Gahl, William, Goldman, David, Grady, Christine, Greene, Mark H., Holland, Steven M., Hull, Sara Chandros

Journal:

The American Journal of Human Genetics

Year:

2016

Language:

english

File:

PDF, 331 KB

english, 2016

15

Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives

Chan, Ben, Facio, Flavia M., Eidem, Haley, Hull, Sara Chandros, Biesecker, Leslie G., Berkman, Benjamin E.

Journal:

American Journal of Bioethics

Year:

2012

Language:

english

File:

PDF, 89 KB

english, 2012

16

Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants

Gliwa, Catherine, Yurkiewicz, Ilana R., Lehmann, Lisa Soleymani, Hull, Sara Chandros, Jones, Nathan, Berkman, Benjamin E.

Journal:

Genetics in Medicine

Year:

2015

Language:

english

File:

PDF, 449 KB

english, 2015

17

Surrogate Receptivity to Participation in Critical Illness Genetic Research

Freeman, Bradley D., Butler, Kevin, Bolcic-Jankovic, Dragana, Clarridge, Brian R., Kennedy, Carie R., LeBlanc, Jessica, Chandros Hull, Sara

Journal:

Year:

2015

Language:

english

File:

PDF, 154 KB

english, 2015

18

Developing Cellular Therapies for Retinal Degenerative Diseases

Bharti, Kapil, Rao, Mahendra, Hull, Sara Chandros, Stroncek, David, Brooks, Brian P., Feigal, Ellen, van Meurs, Jan C., Huang, Christene A., Miller, Sheldon S.

Journal:

Investigative Opthalmology & Visual Science

Year:

2014

Language:

english

File:

PDF, 428 KB

english, 2014

19

Direct-to-Consumer Advertising of Genetic Testing

Gollust, Sarah E., Chandros Hull, Sara, Wilfond, Benjamin

Journal:

JAMA The Journal of the American Medical Association

Year:

2003

File:

PDF, 43 KB

2003

20

Reading between the Lines: Direct-to-Consumer Advertising of Genetic Testing

Sara Chandros Hull and Kiran Prasad

Journal:

Hastings Center Report

Year:

2001

Language:

english

File:

PDF, 58 KB

english, 2001

21

Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives

Sara Chandros Hull, Karen Glanz, Alana Steffen and Benjamin S. Wilfond

Journal:

IRB Ethics and Human Research

Year:

2004

Language:

english

File:

PDF, 1.25 MB

english, 2004

22

Recontacting participants for expanded uses of existing samples and data: a case study

Chen, Stephanie C., Berkman, Benjamin E., Hull, Sara Chandros

Journal:

Genetics in Medicine

Year:

2017

Language:

english

File:

PDF, 478 KB

english, 2017

23

The unintended implications of blurring the line between research and clinical care in a genomic age

Berkman, Benjamin E, Hull, Sara Chandros, Eckstein, Lisa

Journal:

Personalized Medicine

Year:

2014

Language:

english

File:

PDF, 925 KB

english, 2014

24

Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies

Hull, Sara Chandros, Wilson (Diné), David R.

Journal:

American Journal of Bioethics

Year:

2017

Language:

english

File:

PDF, 351 KB

english, 2017

25

Harms of Deception in FMR1 Premutation Genotype-Driven Recruitment

Doernberg, Sam, Hull, Sara Chandros

Journal:

American Journal of Bioethics

Year:

2017

Language:

english

File:

PDF, 307 KB

english, 2017

26

Implementing the Single Institutional Review Board Model: Lessons from the Undiagnosed Diseases Network

Splinter, Kimberly, Hull, Sara Chandros, Holm, Ingrid A., McDonough, Tara L., Wise, Anastasia L., Ramoni, Rachel B.

Journal:

Clinical and Translational Science

Year:

2018

Language:

english

File:

PDF, 160 KB

english, 2018

27

The Ethics of Early Evidence — Preparing for a Possible Breakthrough in Alzheimer's Disease

Lowenthal, Justin, Hull, Sara Chandros, Pearson, Steven D.

Journal:

Boston Medical and Surgical Journal

Year:

2012

Language:

english

File:

PDF, 377 KB

english, 2012

28

Genetic Research Involving Human Biological Materials: A Need to Tailor Consent Forms

Sara Chandros Hull, Holly Gooding, Alison P. Klein, Esther Warshauer-Baker, Susan Metosky and Benjamin S. Wilfond

Journal:

IRB Ethics and Human Research

Year:

2004

Language:

english

File:

PDF, 1.90 MB

english, 2004

29

Variability among institutional review boards’ decisions within the context of a multicenter trial

Silverman, Henry, Hull, Sara Chandros, Sugarman, Jeremy

Journal:

Critical Care Medicine

Year:

2001

Language:

english

File:

PDF, 107 KB

english, 2001

30

The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease

Desine, Stacy, Hollister, Brittany M., Abdallah, Khadijah E., Persaud, Anitra, Hull, Sara Chandros, Bonham, Vence L.

Journal:

AJOB Empirical Bioethics

Year:

2020

File:

PDF, 1.67 MB

2020

31

Grappling With Genomic Incidental Findings in the Clinical Realm

Hull, Sara Chandros, Berkman, Benjamin E.

Journal:

Year:

2014

Language:

english

File:

PDF, 86 KB

english, 2014

32

Patient attitudes about the clinical use of placebo: qualitative perspectives from a telephone survey

Ortiz, Robin, Chandros Hull, Sara, Colloca, Luana

Journal:

Year:

2016

Language:

english

File:

PDF, 1.17 MB

english, 2016

33

The Limits of Disclosure: What Research Subjects Want to Know about Investigator Financial Interests

Christine Grady, Elizabeth Horstmann, Jeffrey S. Sussman, Sara Chandros Hull

Journal:

The Journal of Law, Medicine & Ethics

Year:

2006

Language:

english

File:

PDF, 121 KB

english, 2006

34

Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research

Hull, Sara Chandros, Sharp, Richard R., Botkin, Jeffrey R., Brown, Mark, Hughes, Mark, Sugarman, Jeremy, Schwinn, Debra, Sankar, Pamela, Bolcic-Jankovic, Dragana, Clarridge, Brian R., Wilfond, Benjami

Journal:

American Journal of Bioethics

Year:

2008

Language:

english

File:

PDF, 454 KB

english, 2008

35

Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up

Aaron J. Goldenberg, Sara Chandros Hull, Jeffrey R. Botkin, Benjamin S. Wilfond

Journal:

The Journal of Pediatrics

Year:

2009

Language:

english

File:

PDF, 249 KB

english, 2009

36

Consent Forms and the Therapeutic Misconception: The Example of Gene Transfer Research

Nancy M. P. King, Gail E. Henderson, Larry R. Churchill, Arlene M. Davis, Sara Chandros Hull, Daniel K. Nelson, P. Christy Parham-Vetter, Barbra Bluestone Rothschild, Michele M. Easter and Benjamin S.

Journal:

IRB Ethics and Human Research

Year:

2005

Language:

english

File:

PDF, 2.56 MB

english, 2005

37

What Does the Duty to Warn Require?

Shah, Seema K., Hull, Sara Chandros, Spinner, Michael A., Berkman, Benjamin E., Sanchez, Lauren A., Abdul-Karim, Ruquyyah, Hsu, Amy P., Claypool, Reginald, Holland, Steven M.

Journal:

American Journal of Bioethics

Year:

2013

Language:

english

File:

PDF, 63 KB

english, 2013

38

Direct-to-consumer sales of genetic services on the Internet

Gollust, Sarah E., Wilfond, Benjamin S., Hull, Sara Chandros

Journal:

Genetics in Medicine

Year:

2003

Language:

english

File:

PDF, 200 KB

english, 2003

39

Identifiability and Privacy in Pluripotent Stem Cell Research

Isasi, Rosario, Andrews, Peter W., Baltz, Jay M., Bredenoord, Annelien L., Burton, Paul, Chiu, Ing-Ming, Hull, Sara Chandros, Jung, Ji-Won, Kurtz, Andreas, Lomax, Geoffrey, Ludwig, Tenneille, McDonald

Journal:

Year:

2014

Language:

english

File:

PDF, 128 KB

english, 2014

40

Views of American OB/GYNs on the ethics of prenatal whole-genome sequencing

Bayefsky, Michelle J., White, Amina, Wakim, Paul, Hull, Sara Chandros, Wasserman, David, Chen, Stephanie, Berkman, Benjamin E.

Journal:

Prenatal Diagnosis

Year:

2016

Language:

english

File:

PDF, 367 KB

english, 2016

41

Towards a more representative morphology: clinical and ethical considerations for including diverse populations in diagnostic genetic atlases

Koretzky, Maya, Bonham, Vence L., Berkman, Benjamin E., Kruszka, Paul, Adeyemo, Adebowale, Muenke, Maximilian, Hull, Sara Chandros

Journal:

Genetics in Medicine

Year:

2016

Language:

english

File:

PDF, 1.27 MB

english, 2016

42

Adults with Cystic Fibrosis and (In)fertility: How Has the Health Care System Responded?

SARA CHANDROS HULL, NANCY E. KASS

Journal:

Journal of Andrology

Year:

2000

Language:

english

File:

PDF, 38 KB

english, 2000

43

The “Right Not to Know” in the Genomic Era: Time to Break From Tradition?

Berkman, Benjamin E., Hull, Sara Chandros

Journal:

American Journal of Bioethics

Year:

2014

Language:

english

File:

PDF, 92 KB

english, 2014

44

Images of Sexuality and Reproduction: Services: Meeting Women's Needs || Reading between the Lines: Direct-to-Consumer Advertising of Genetic Testing in the USA

Sara Chandros Hull and Kiran Prasad

Journal:

Reproductive Health Matters

Year:

2001

Language:

english

File:

PDF, 668 KB

english, 2001

45

Response to Open Peer Commentaries on “Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives”

Hull, Sara Chandros, Chan, Ben, Biesecker, Leslie G., Berkman, Benjamin E.

Journal:

American Journal of Bioethics

Year:

2012

Language:

english

File:

PDF, 38 KB

english, 2012

46

Informed consent process for patient participation in rare disease registries linked to biorepositories

Yaffa R. Rubinstein, Stephen C. Groft, Sara Hull Chandros, Julie Kaneshiro, Barbara Karp, Nicole C. Lockhart, Patricia A. Marshall, Richard T. Moxley III, Geraldine B. Pollen, Vanessa Rangel Miller, J

Journal:

Contemporary Clinical Trials

Year:

2012

Language:

english

File:

PDF, 168 KB

english, 2012

47

Physicians’ Responses to Resource Constraints

Hurst, Samia A., Hull, Sara Chandros, DuVal, Gordon, Danis, Marion

Journal:

Archives of Internal Medicine

Year:

2005

Language:

english

File:

PDF, 89 KB

english, 2005

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